Providing information, support and connection

The OI Society was formed in 1977 by parents and friends of those with OI in order to create a point of contact for newly diagnosed families.

From simple beginnings, a nation-wide community has grown – a community where people can freely exchange experiences, friendship and knowledge of OI and how to navigate the world with OI.

IMPORTANT NOTICE – SEPTEMBER 2023: THE WEBSITE IS CURRENTLY EXPERIENCING ISSUES WITH THE ONLINE PAYMENT PORTAL.

If you would like to join as a member, or renew your membership, please email memberships@oiaustralia.org.au for further information.

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Parents of Children with OI

Information on many topics related to understanding and managing OI. Here is a sample of topics Parents often ask about.

Adults with OI

After the age of 40, adults with OI should have a complete physical each year.

Medical news

Over the past several decades, scientists have learned a significant amount about the diagnosis and treatment of bone disease.

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Osteogenesis imperfecta (OI) is a genetic disorder that causes a person's bones to break easily, often from little or no apparent trauma. OI is also called "brittle bone disease." OI varies in severity from person to person, ranging from a mild type to a severe type that causes death before or shortly after birth.

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Latest News

OI SOCIETY CONFERENCE 2022

Research and treatments

Recent articles on research and treatment of Osteogenesis Imperfecta (OI).

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Featured Story

Spotlight on South Australian Dancer in the OI Community

Our very own, Matt Shilcock, of the OI Society Board has featured in an ABC article which describes his love for dancing and how his OI has only contributed to the uniqueness he can offer to...

Wishbone Day is supported by

OI Society are very grateful to Rotary Club Dee Why Warringah for their continuing support of Wishbone Day.