Providing information, support and connection

The OI Society was formed in 1977 by parents and friends of those with OI in order to create a point of contact for newly diagnosed families.  From simple beginnings, a nation-wide community has grown. A community where people can freely exchange experiences, friendship and knowledge of OI and how to navigate the world with OI.

Learn more Join us

Parents with OI

Information on many topics related to understanding and managing OI. Here is a sample of topics Parents often ask about.

Adults with OI

After the age of 40, adults with OI should have a complete physical each year.

Medical news

Over the past several decades, scientists have learned a significant amount about the diagnosis and treatment of bone disease.

Join Us

Osteogenesis imperfecta (OI) is a genetic disorder that causes a person's bones to break easily, often from little or no apparent trauma. OI is also called "brittle bone disease." OI varies in severity from person to person, ranging from a mild type to a severe type that causes death before or shortly after birth.

Become a member Become a sponsor

Events

nOIse Conference October 2017

6 October to October 8, 2017

National Osteogenesis Imperfecta Society Event  nOIse in MELBOURNE  6 -7 October 2017 The conference registration is live… Please make sure …

View all events

    Latest News

    Disability and or NDIS specific advocates

    If you are concerned at all about your NDIS Plan. If you’ve tried on your own and your review or appeal is …

    Read more

    Wishbone Day is supported by

    OI Society are very grateful to Rotary Club Dee Why Warringah for their continuing support of Wishbone Day.

    sponsor