Providing information, support and connection

The OI Society was formed in 1977 by parents and friends of those with OI in order to create a point of contact for newly diagnosed families.  From simple beginnings, a nation-wide community has grown. A community where people can freely exchange experiences, friendship and knowledge of OI and how to navigate the world with OI.

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Parents with OI

Information on many topics related to understanding and managing OI. Here is a sample of topics Parents often ask about.

Adults with OI

After the age of 40, adults with OI should have a complete physical each year.

Medical news

Over the past several decades, scientists have learned a significant amount about the diagnosis and treatment of bone disease.

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Osteogenesis imperfecta (OI) is a genetic disorder that causes a person's bones to break easily, often from little or no apparent trauma. OI is also called "brittle bone disease." OI varies in severity from person to person, ranging from a mild type to a severe type that causes death before or shortly after birth.

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nOIse Conference October 2017

6 October to October 8, 2017

National Osteogenesis Imperfecta Society Event  nOIse in MELBOURNE  6 -7 October 2017 The conference registration is live… Please make sure …

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    Latest News

    Disability and or NDIS specific advocates

    If you are concerned at all about your NDIS Plan. If you’ve tried on your own and your review or appeal is …

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    Wishbone Day is supported by

    OI Society are very grateful to Rotary Club Dee Why Warringah for their continuing support of Wishbone Day.