Building Bonds, Empowering Lives
From simple beginnings, a nation-wide community has grown – a community where people can freely exchange experiences, friendship and knowledge of OI and how to navigate the world with OI.
What is OI?
Osteogenesis Imperfecta (OI) is a genetic bone disorder characterised by fragile bones that break easily. It is also known as brittle bone disease. A person is born with this disorder and is affected throughout their lifetime.
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Osteogenesis Imperfecta (OI) is a genetic bone disorder characterised by fragile bones that break easily. It is also known as brittle bone disease. A person is born with this disorder and is affected throughout their lifetime.
The OI Society was formed in 1977 by parents and friends of those with OI in order to create a point of contact for newly diagnosed families. From simple beginnings, a nation-wide community has grown – a community where people can freely exchange experiences, friendship and knowledge of OI and how to navigate the world with OI.
Stories
Unbreakable is a short documentary portrait focusing on a charismatic young lady Jodie Owen, who was born with Osteogenesis Imperfecta. Moving, thought provoking and engaging, Unbreakable is a story that will stay with you well after the credits have ceased.
Stories
Debbie is from Western Australia and has type 4 OI. Hear Debbie tell her own inspiring OI story.
Stories
Tessa is from Mandurah, in Western Australia. She was diagnosed at the age of five with type 1 OI after breaking her femur. Tessa is the only person in her family with OI. Hear Tessa describe her journey.
Stories
Leo was diagnosed with type 1 OI 18 months ago. Leo's dad also has OI. Listen to Leo and his mum tell Leo's story.
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