News & Media

OIFE Magazine

http://www.oif.org/site/DocServer/OIFE_Magazine_No_1-2018.pdf?docID=19162

Health Professional Register

The Osteogenesis Imperfecta Society of Australia has been providing a support to families and individuals living with Osteogenesis Imperfecta for …

Crispr therapies in the media

https://www.createdigital.org.au/research-warning-crispr-therapies/?utm_source=facebook.com&utm_medium=sponsored-social&utm_campaign=engagement&utm_content=lookalike-fbengaged

Status on Consensus Paper for Physical Rehabilitation in OI

Below is a link to the Care4BrittleBones newsletter which outlines the development a project aimed at developing a worldwide consensus …

Membership overview

NDIS in WA

https://www.ndis.gov.au/news/events/wa.html

Perth Children’s Hospital Opening

Great news… the Perth Children’s Hospital is currently undergoing a phased opening.  This will mean that over the coming months …

Travel Insurance update

Overseas travel insurance from QBE has now got OI as a pre-existing condition.

Opportunity to participate – NSW and ACT members

We have been contacted by Genetic Alliance Australia with an opportunity to support a second year Masters of Genetic Counselling …

Share in the over $150,000 in cash & prizes.

Simply make a <5min short film or documentary with an ability/disability theme and submit by June 1, 2018. We would …

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Osteogenesis imperfecta (OI) is a genetic disorder that causes a person's bones to break easily, often from little or no apparent trauma. OI is also called "brittle bone disease." OI varies in severity from person to person, ranging from a mild type to a severe type that causes death before or shortly after birth.

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