News & Media

NOISE Conference 2019 – Breaking Barriers Not Bones – Registrations are open

Our Biennial conference is back in Sydney this year for the first time in 6 years. We hope to see …

David’s Story

Special photographic exhibition for Rare Disease Day

Genetic Alliance and Gaucher Australian and New Zealand have partnered with Sanofi to host a special photographic exhibition for Rare …

Gregory & Dolores Farrell Scholarships for 2019 – Applications Now Open

The Gregory & Dolores Farrell Scholarships for students who use a wheelchair for mobility undertaking tertiary education in NSW will …

AGM 2018 – Nov 21 8pm AEDST (Skype)

Hi all Our AGM will be happening on the 21st of November and we would love to have your input.  …

OIFE Magazine

http://www.oif.org/site/DocServer/OIFE_Magazine_No_1-2018.pdf?docID=19162

Health Professional Register

The Osteogenesis Imperfecta Society of Australia has been providing a support to families and individuals living with Osteogenesis Imperfecta for …

Crispr therapies in the media

https://www.createdigital.org.au/research-warning-crispr-therapies/?utm_source=facebook.com&utm_medium=sponsored-social&utm_campaign=engagement&utm_content=lookalike-fbengaged

Status on Consensus Paper for Physical Rehabilitation in OI

Below is a link to the Care4BrittleBones newsletter which outlines the development a project aimed at developing a worldwide consensus …

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Osteogenesis imperfecta (OI) is a genetic disorder that causes a person's bones to break easily, often from little or no apparent trauma. OI is also called "brittle bone disease." OI varies in severity from person to person, ranging from a mild type to a severe type that causes death before or shortly after birth.

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