Your Stories

If you want to share your story please contact us at:  president@oiaustralia.org.au

Debbie’s Story

 

Tessa’s Story

Indi’s Story

Leo’s Story

OI Warriors – Johnson Family Story

 

UNBREAKABLE SHORT DOCUMENTARY

Unbreakable is a short documentary portrait focusing on a charismatic young lady Jodie Owen, who was born with Osteogenesis Imperfecta. Moving, thought provoking and engaging, Unbreakable is a story that will stay with you well after the credits have ceased.

Winner of Best Documentary 2016 at the Lancaster International Short Film Festival.

 

 

Unbreakable Spirit by Sarah Richards

Sarah Richards has made a short film for the Focus on Ability Short Film Festival.
It is called Unbreakable Spirit her life with Osteogenesis Imperfecta (Brittle Bones)
Please help and vote to for Sarah, and this will help her film to win one or more prizes.Also if you can spread the word to your friends, family and work colleagues about this competition.
By voting for her film, It will also help with awareness of Osteogenesis Imperfecta OI.
Voting starts 25 July and concludes 7 August.
Please click the link…..
http://www.focusonability.com.au/FOA/films/Unbreakable_Spirit_1256.html
Unbreakable Spirit follows the story of Sarah, a teenager living with a rare bone condition; Osteogenesis imperfecta (O.I), showing the difficulties she faces of daily life with relentless courage. This documentary will be filmed in a mixed style, using a combination of interactive and observational techniques. Diagnosed at a young age with O.I, also known as brittle bones, Sarah has broken over twenty-five bones. Regardless of this factor, it hasn’t stopped her from living as independently as she possibly can. Activities like driving, cooking and even normal routines might seem impossible when attempting it all from a wheelchair. The uplifting style of this documentary is intended to make audiences feel that their only limitation is a negative attitude. The film will exhibit this through her determination and optimism through life’s challenges, showing the audience that anything can be possible.

 

Jodie Owen

Hi everyone! The long awaited documentary about my life, which I always get asked about, is finally doing something! It’s been a long time in the making but it’s been accepted into a Pennsylvanian short film festival and will be played on the 20th October! Depending on how it goes, it may open more doors for future screenings at other festivals, television slots, or who knows, even a regular show if I’m lucky! Lol  Anyway, please share this teaser of the film – the girls who made it have worked extremely hard to get it to this point! Enjoy

 

 

Unbreakable – Short Documentary Teaser from REALFILMS on Vimeo.

My experience living with OI

By Julia de Bres, October 2009

Posted on Jul 25, 2016

13649587_10154583583099384_1243339450_nIn 2009 a friend asked me to write down some reflections

about having OI, for her occupational therapy class……… Read more

 

 

Meet Abby

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My name is Abby I’ve been state rep since late 2000’s. Since then our group has grown,
we meet each year for wishbone day, also hold get together throughout the year,
it’s great to catch up with everyone.
I began working for ATO in 2008 and have been disability advisor
in the workplace for the past  2years………. Read more

 

 

Meet Kat

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Hi everyone, my name is Kathleen Barrington (Kat) and I live in Hobart Tasmania. I’m a 29 year old wife to Laurence (35) who has type 1 OI and mother to Matilda (2) who also has type 1 OI. I work part time in an administration and accounts roll and I am also a volunteer Girl Guide leader for my region. As OI runs in my husband’s family we knew there was always chance any children we had would have OI. Within saying that it runs in his family there is only 1 other family member………. Read more

 

 

Meet Fern

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Hi everyone, my name is Fern and I am the State Representative for the OI Society of Australia.
I want to let you know that you aren’t alone here in WA and my objective over the next few years is to understand who is out there in the OI community and how we can support each other here in WA. Until 2012 I did not even know what OI was … read more

Meet Raechel

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Hi my name is Raechel; I am wife to David who has OI type 4. We have been married for 25 years. We have 2 beautiful children, Matthew no OI who is 18 and Sarah 16 years old and has OI type 4. David and I have been part of the OI Society since Matthew was born, 18 years. We have been to conferences in Sydney since Sarah was born. I have been a rep for Qld for a number of years, 11 years in fact. We held the last OI conference in Brisbane, first time in Qld………. Read more

 

 

Meet Lynn

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My name is Lynn and I have type 1 OI as does my younger brother.  I was born in UK and after many weeks of crying and screaming I was finally diagnoses with a broken femur and at age 3 months and finally with OI.  In 1951 my parent’s immigrated to Australia with their 4 children.
Having OI meant there were many difficulties to overcome. Dr’s didn’t know much about treating it, schools didn’t………. Read more

 

Meet Maria

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Hi my name is Maria, I am 43 years of age and was born with Type 3  Osteogenesis imperfecta  (O.I).   OI is normally a genetic condition however no one in my family has had OI.  I live in Forest Hill, Melbourne with my husband of nearly 10 years, Troy.  I, along with Dee am the Victorian state representative for the OI Society of Australia.  Other things that keep me busy include being on the Whitehorse City Council Disability Advisory Committee………. Read more

 

 

 

Meet Dee

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Contact: Maria   or   Bernice (Dee)   vic@oisociety.org.au

My name is Bernice, nicknamed Dee.  I am a 7th generation Type I, OI “graduate”.
I was born in Bulawayo, Southern Rhodesia (now Zimbabwe) in 1956 and had my first fracture at the grand old age of 5 days.   Thankfully I was placed in the care of an orthopaedic specialist who took the time to study up on OI and became my champion and carer.I have been extremely lucky through the years and have met many wonderful people who………. Read more

 

 

Meet Arthur

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I had just had my 30th birthday in December 1989.

I was diagnosed with OI……… Read more

 

 

 

Join Us

Osteogenesis imperfecta (OI) is a genetic disorder that causes a person's bones to break easily, often from little or no apparent trauma. OI is also called "brittle bone disease." OI varies in severity from person to person, ranging from a mild type to a severe type that causes death before or shortly after birth.

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