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Genetic and Rare Disease Network

 


What would you say to you at the beginning of your child’s diagnosis

Our audience responded when we asked “What would you say to you at the beginning of your child’s diagnosis?”

Here is what they said.

 


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OI Society of Australia Newsletter  < Current to 1993>

OSTEOGENESIS IMPERFECTA  SOCIETY  OF AUSTRALIA (BRITTLE  BONES)

NEWSLETTER < 1993 to 1991 >

OSTEOGENESIS IMPERFECTA  SOCIETY  OF N.S.W. (BRITTLE  BONES)

O.I. NEWS  < 1990 to 1982 >

NEWSLETTER OF  THE OSTEOGENESIS IMPERFECTA  SOCIETY  OF N.S.W. (BRITTLE  BONES)

EVEN BREAK  〈 1984 to 1976 〉

MAGAZINE OF THE OSTEOGENESIS IMPERFECTA FOUNDATION VICTORIA (BRITTLE  BONES)

Breakthrough  OIF Newsletter

THE NEWSLETTER OF THE OSTEOGENESIS IMPERFECTA FOUNDATION USA

OIFE Newsletter

 THE NEWSLETTER OF THE OSTEOGENESIS IMPERFECTA FOUNDATION EUROPE

Brittle Bone Society Newsletter

THE NEWSLETTER OF THE BRITTLE BONE SOCIETY UK

 


The OI Society of Australia

Disclaimer

The advice and information provided by OI Society of Australia on this website is general only, and has been prepared without taking into account your particular circumstances and needs. Before acting on any advice on this website you should  obtain appropriate independent or professional advice before any action or decision is taken on the basis of any material on this web site. OI Society of Australia is not responsible for the content of any site owned by a third party that may be linked to this website, whether such a link is provided by us or by a third party. These links are provided as a courtesy service and no judgement or warranty is made by us concerning the suitability, accuracy or timeliness of the content of any site that may be linked to the OI Society of Australia website. By providing access to other websites, we are not recommending or endorsing any brand, products or services offered by the organisation sponsoring or owning the linked website. Although every effort has been made to keep the information up to date and correct and to verify the accuracy of the information contained in this web site, OI Society of Australia, its officers and agents disclaim all liability for any error, inaccuracy in, or omission from the information contained on this website or any loss or damage suffered by any person directly or indirectly through relying on this information.

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Osteogenesis imperfecta (OI) is a genetic disorder that causes a person's bones to break easily, often from little or no apparent trauma. OI is also called "brittle bone disease." OI varies in severity from person to person, ranging from a mild type to a severe type that causes death before or shortly after birth.

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