Update on OI Society Sponsored Research

Research is still continuing at The Children’s Hospital at Westmead, in conjunction with Macquarie University, investigating physical activity participation of children with Osteogenesis Imperfecta. 55 children have enrolled in the study to date, with recruitment continuing until the end of the year. Four Macquarie University Physiotherapy students have now completed their role on the study and graduated from their course.

The preliminary findings were presented in July at the end of course research presentation night, with over 50 graduating physiotherapy students, and university clinical partners, learning more about Osteogenesis Imperfecta and physical activity upon listening to these presentations. Preliminary findings will also be presented at the 1st Asia Pacific Bone Disorder Symposium, Melbourne, September 23rd 2016, with 3 abstracts accepted for oral presentation.

Findings related to barriers to participation, self-efficacy, and current physical activity participation levels of children with Osteogenesis Imperfecta will be presented at this conference for both health professionals and families. The ongoing support of the OI Society of Australia is much appreciated, allowing this study to continue for the full year and obtain important information that will assist both families and health professionals involved in the management of children with Osteogenesis Imperfecta.

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Osteogenesis imperfecta (OI) is a genetic disorder that causes a person's bones to break easily, often from little or no apparent trauma. OI is also called "brittle bone disease." OI varies in severity from person to person, ranging from a mild type to a severe type that causes death before or shortly after birth.

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