The OI Foundation Research Announcement

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A new study through the OI Foundation in America, is open for biological parents with osteogenesis imperfecta (OI) and biological parents of children with OI.
This study will explore attitudes towards prenatal diagnostic testing.
Some parents may have participated in prenatal diagnostic testing with a genetic counselor during pregnancy.
It’s not necessary to have participated in any testing to take part in this research.

This study involves a self-report survey that takes most people about 20 minutes.

More details on the study  and The self-report survey can be found: https://redcap.research.cchmc.org/surveys/?s=LLN8LPFYW3

Please contact Kara Ayers, Principal Investigator, at (513) 803-4402 or kara.ayers@cchmc.org if you have any questions.
We greatly appreciate your attention and interest in advancing research related to osteogenesis imperfecta.

Posted in Press releases, Research and treatments

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Osteogenesis imperfecta (OI) is a genetic disorder that causes a person's bones to break easily, often from little or no apparent trauma. OI is also called "brittle bone disease." OI varies in severity from person to person, ranging from a mild type to a severe type that causes death before or shortly after birth.

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