The Board

 

The OI Society of Australia is run by a volunteer board who are elected by the members on an annual basis. We meet about once a month via Skype and every second year we meet in person for a weekend workshop to discuss the strategic direction of the Society.  This session is held in the non-conference year.


OI Society of Australia Board

Your 2018 Board

 

President: Fern Dyball

Image4

Vice President: Bronwyn Bant

Treasurer: Trish McFerran

317193_10150295340109708_8310605_n

Secretary:-  Wendy Pilolo

Membership Officer: Lynn Dunn-Marler

1468602_10152410732574616_1265255508_n

Web Master:  vacant

Board Members:
Arthur Szeto, Julie Haraksin, Ian Irwin, Jenny Cowley, Patricia Potgeiter

Image5 Image3  Image7

Medical advisory panel:
Professor David Sillence

Image result
Dr Jenny Ault

Image8

 

 


History of the Board

The Society was formed in 1977 by parents and friends of people with O.I. and remains a voluntary organisation with no paid staff or Government funding. The OI Society was originally incorporated as the Osteogenesis Imperfecta Society of NSW (Brittle Bones) under the seal of the Corporate Affairs Commission at Sydney on 5th May 1978 with a Previous NSW Registration Number is 204 932-15. The Society is now an Australian Public Company Limited by Guarantee . ACN 001 534 309

The OI Society was registered with the Australian Charities and Not-for-profits Commission (ACNC) as a charity with ABN 13 001 534 309. All donations to the Society are Tax Deductible.

The business affairs of the Society are managed by a Board of at least six persons and no more than 12, including a President and Vice President, all of whom are elected at the AGM.

The Society has been most fortunate over its 39 years with the outstanding dedication of its Board members (many of whom have OI) and particularly in the strong leadership shown by its presidents in pursuing the Society’s aims.  Initially as the OI Society of NSW under Lynn Foxall’s presidency in 1993 the Society changed its name and widened its focus to help support all of Australia under the name of OI Society of Australia.

It was the practice then to meet face to face, there were very few families from the other states, as members, But we were certainly aware of the lack of state involvement and so we actively sort representatives from each state, making them Board Members in 1996.  There was even active fundraising to support these representatives and of course other members, to be able to attend the conferences, here in Sydney. This has been instrumental in laying down the foundation of incorporating families and thus Board members from interstate. Today we have board members and state representatives from all states of Australia.

Prior to 2009, the OI Society Board was made up of members from Sydney as meetings were held on a monthly basis in person, however this made it hard for people outside of Sydney from participating. With thanks to the progressive thinking of the then President, Julie Stonestreet and the board of that time together with the rapid improvements in technology it was decided to facilitate monthly Board Meetings and AGMs to Skype conference calls.  This has enabled the Society to tap into the broader nationwide community of people seeking to participate and willing to volunteer to be on the board and have a say in how the Society is managed.

Special credit should be given to the sterling work of the early presidents who had the most difficult task of getting the “show on the road” from a standing start. At that time in 1977, little was known, not only about Osteogenesis Imperfecta, but about the number ,distribution and circumstances of people living with the condition in the community.

Since the Society’s inception, the Committee has been composed almost entirely of family members and adults with OI. OI is a relatively rare condition with best estimates varying between 1 in 20,000 to 1 in 50,000.  Individuals are thus comparatively few and unlikely to be more than 1200 in Australia and widely scattered.  The enlistment of volunteers to run the Society has always been challenging particularly as most have little or no experience in management of a charitable organisation. However approximately 50 stalwarts have come forward over the years and despite the difficult learning curve many experience, the progress and success of the Society has been creditable.


Past Board Members of the OI Society of Australia

28 August 2016

President: Fern Dyball
Vice President: Julie Haraksin
Treasurer: Trish McFerran
Secretary:-  Christalyne Look
Membership Officer: Lynn Dunn-Marler
Web Master:  David Richards
Board Members:
Arthur Szeto, Jared Martin, Helen Keogh, Ian Irwin

Medical advisory panel:
Professor David Sillence
Dr Jenny Ault


31 August 2015

President: – Fern Dyball

Vice President: – Julie Haraksin

Treasurer: – Trish McFerran

Secretary: – Raechel Richards

Membership Officer: Lynn Dunn-Marler

Web Master:  David Richards

Board Members: – Arthur Szeto, Jared Martin, Ian Irwin, Christalyne Look, Liezel Smith, Helen Keogh


31 August 2014

Vice President: – Andrew Longhurst

Vice President: – Melinda Montgomery

Secretary: -Fern Dyball

Treasurer: – Trish McFerran

Board Members:- Amber Del Pin, Jared Martin, Raechel Richards, Kate Pardy, Julie Haraksin, Ian Irwin


08 September 2013

­ President: – No one at present

Vice President:- Andrew Longhurst, Melinda Montgomery

Secretary:- Kate Pardy

­ Treasurer:- Trish McFerran

­ Board Members:- Amber Del Pin, Fern Dyball, Raechel Richards, Jared Martin,Rosie Mayes


11 September 2012

President: –  Julie Stonestreet

Vice President: –   Melinda Montgomery, Andrew Longhurst

Secretary:-  Karen Ford

Treasurer: – Trish McFerran

Board Members: – Maria Wallace, Arthur Szeto, Kate Pardy, Gaye Brown, Abby Meyer


11 September 2011

President: –  Helen Keogh

Vice-Presidents: –  Melinda Montgomery

Secretary: –   Abby Myer

Treasurer: – Trish McFerran

Board Members: – Arthur Szeto, Andrew Longhurst, Maria Wallace, Sara Mitchell, Karen Ford


19 September 2010

President: – No one at present

Vice President: –  Helen Keogh, Julie Stonestreet

Secretary: – Cheryl Gatt

Treasurer: – Patricia McFerran

Board Members: – Mike Kendall, Arthur Szeto, Fiona Winters, Melinda Montgomery, Kate Pardy


 2009

President: – No one at present

Vice President: – Julie Stonestreet, Arthur Szeto

Secretary: – Davina Knight

Treasurer: -Mike Kendall

Board Members: – Andrew Longhurst, Gail Peacock, Ian Irwin, Helen Keogh, Julie Haraksin, Jenny Knight


 2008

President: – Julie Haraksin

Vice President: – Julie Stonestreet, Arthur Szeto

Secretary: – Chris Taig

Treasurer: – Mike Kendall

Board Members: – Suzan Mehmet ,Andrew Longhurst ,Gail Peacock


2007

President: – Craig Andrews

Vice President: – Julie Stonestreet, Julie Haraksin

Secretary: – Lauren Naughton

Treasurer: – Mike Kendall

Board Members: – Sue Chamberlain, Lynne Foxall, Suzan Mehmet,  Andrew Longhurst, Gary Szeto, Gail Peacock, Christine Taig


2006

President: – Craig Andrews

Vice President: – Julie Stonestreet, Julie Haraksin

Secretary: – Janet Swift

Treasurer: –  Mike Kendall

Board Members: – Sue Chamberlain, Lynne Foxall, Peter Foxall, Andrew Longhurst, Kristy Melville, Gail Peacock, Christine Taig


2005

President: – Julie Stonestreet

Vice President:- Lynne Foxall, Peter Foxall

Secretary: – Janet Swift, Suzy  Winch

Treasurer: – Mike Kendall

Board Members: – Chris Taig, Sue Chamberlain, Andrew Longhurst, Kristy Melvil, Gail Peacock, Fiona Winters


2004

President: – Julie Stonestreet

Vice President:-  Lynne Foxall ,Chris Taig

Secretary: – Janet Swift, Suzy Winch

Treasurer: – Mike Kendall, Sue Chamberlain

Editor:-  Fiona Winters

Board Members: – Andrew Longhurst, Peter Foxall, Kristy Melville, Gail Peacock


2003

President: – Julie Stonestreet

Secretary: – Janet Swift


2002

President: Julie Stonestreet

Secretary:- Mrs. Suzanne Winch


2001

President: – Lynne Foxall

Secretary:- Suzanne Winch

Treasurer: – Mike Kendall


2000

President: – Lynne Foxall

Secretary:- Suzanne Winch

Treasurer :- Mike Kendall


1999

President: Julie Stonestreet

Secretary: Mrs. Suzanne Winch


1998

President: – Lynne Foxall

Vice President: – Gail Peacock

Treasurer: – Christine Taig

Director: – Sue Winch, Leesa, Morris Chris Taig, Mike Kendall, Paul Taig


20 August 1997

President/Secretary: – Lynne Foxall

Vice President: – Paul Taig, Gail Peacock

Treasurer: – Christine Taig

Director: – Neil Murrin, Julie Stonestreet, Fiona Gallagher, Peter Foxall, Brone Cosimo, Michael Kendall


18 August 1996

President/Secretary: – Lynne Foxall

Vice President: – Paul Taig, Gail Peacock

Treasurer: – Christine Taig

Director: – Neil Murrin, Julie Stonestreet, Fiona Gallagher, Peter Foxall, Brone Cosimo


28 August 1995

President/Secretary: – Lynne Foxall

Vice President: – Gail Peacock, Doris Vassallo

Treasurer: – Paul Taig, Christine Taig

Director: – Neil Murrin, Julie Stonestreet, Fiona Gallagher, Georgina Pierotti, Peter Foxall, Brone Cosimo


28 August 1994

President: – Lynne Foxall

Vice President: – Neil Murrin, Doris Vassallo

Secretary: –  Georgina Pierotti

Treasurer: – Paul Taig, Christine Taig

Director: – Janette Cameron-Smith, Gail Peacock, Carole Langston, Peter Foxall


The Osteogenesis Imperfecta Society of  Australia

29th day of August 1993


29 August 1993

President: – Lynne Foxall

Vice President: – Neil Murrin, Doris Vassallo

Secretary: –  Georgina Pierotti

Treasurer: – Paul Taig

Director: – Ian Irwin, Janette Cameron-Smith, Julie Haraksin, Desmond Donovan, Gail Peacock, Phillip Pierotti


30 August 1992

President: – Allison Thorpe

Vice President: – Ian Irwin, Neil Murrin

Secretary: –  Lynne Foxall

Treasurer: – Paul Taig

Director: – Janette Cameron-Smith, Doris Vassallo, Julie Haraksin, Desmond Donovan, Julie Stonestreet, Fiona Gallagher


30 August 1991

President: – Allison Thorpe

Vice President: – Ian Irwin, Ian Foxall

Secretary: –  Lynne Foxall

Treasurer: – Paul Taig

Director: – Janette Cameron-Smith, Ross Chisholm, Doris Vassallo, Julie Haraksin, Neil Murrin


26 August1990

President: – Allison Thorpe

Vice President: – Ian Foxall

Secretary: –  Lynne Foxall

Treasurer: – John Roberts

Director: – Ian Irwin, Janette Cameron-Smith, Ross Chisholm, Doris Vassallo, Julie Haraksin, Neil Murrin, Paul Taig


27 August 1989

President: – Allison Thorpe

Vice President: – Ian Foxall, Janette Cameron-Smith

Secretary: –  Lynne Foxall

Treasurer: – John Roberts

Director: – John Foster, Lynne Foster, Ross Chisholm, Doris Vassallo


07 August 1988

President: – Allison Thorpe

Vice President: – Ian Foxall, Janette Cameron-Smith

Secretary: –  Lynne Foxall

Treasurer: – John Roberts

Director: – Ian Irwin, Bert Chamberlain, John Foster, Lynne Foster, Ross Chisholm


30 August 1987

President: – Allison Thorpe

Vice President: – Gwen Crane, Ian Foxall

Secretary: –  Lynne Foxall

Treasurer: – John Roberts

Director: – Ian Irwin, Janette Cameron-Smith, Bert Chamberlain


31 August 1986

President: – Allison Thorpe

Vice President: – Gwen Crane, Ian Foxall

Secretary: –  Lynne Foxall

Treasurer: – John Roberts

Director: – Ian Irwin, Janette Cameron-Smith, Bert Chamberlain


25 August 1985

President: – John Roberts

Secretary: –  Geoff Boreham

Vice President: – Gwen Crane, Ian Foxall

Treasurer: – Allison Thorpe

Director: – Ian Irwin, Janette Cameron-Smith, Bert Chamberlain, Lynne Foxall


19 August 1984

President: – John Roberts

Vice President: – Gwen Crane, Ian Foxall

Secretary: –  Geoff Boreham

Director: – Annett Pugh, Ian Irwin, Allison Thorpe, Janette Cameron-Smith, Bert Chamberlain, Lynne Foxall


28 August 1983

President: – John Roberts

Vice President: – Guy Roberts, Kenneth Peter

Secretary: –  Geoff Boreham

Director: – Patricia Salmon, Annett Pugh, Gwen Crane, Ian Irwin, Allison Thorpe, Jackie Vassallo


28 November 1982

President: – John Roberts

Vice President: – Guy Roberts, Kenneth Peter

Secretary: –  Geoff Boreham

Director: – Patricia Salmon, Annett Pugh, Gwen Crane, Ian Irwin, Allison Thorpe


29 November 1981

President: – Richard Cormick

Vice President: – Guy Roberts, John Roberts

Secretary: – Pam Cormick, Helen Manning

Treasurer: – Kenneth Peter

Director: – Patricia Salmon, Jean Best


07 December 1980

President: – Richard Cormick

Vice President: – Patricia Salmon

Secretary: – Pam Cormick

Treasurer: – Kenneth Peter

Director: – Steven Grigor, Nanette Rosser, Diedre Millard, Guy Roberts


14 October 1979

President: – Paul Rosser

Vice President: – Richard Cormick

Secretary: – Patricia Salmon

Treasurer: – Kenneth Peter

Social Secretary: – Donna Ragen

Director: – Paul Ragen, Rita Hornshaw, Guy Roberts


03 September 1978

President: – Len Crane

Vice President: -Rita Hornshaw

Secretary/Treasurer: -Patricia Salmon

Social Secretary: – Donna Ragen

Director: – Michael McAuliffe, Robert Millard, Joe De Bono, Richard Cormick


The Osteogenesis Imperfecta Society of  N.S.W.

15th day of March, 1978


03 July 1977

President: – Michael McAuliffe

Secretary/Director: – Paul Ragen

Treasurer/Vice President: – Peter Gallagher

Vice President/Committee: – Len Crane

Committee/Director: – Robert Millard, Chris Lambert


01 May 1977

Chairman: – Michael McAuliffe

Secretary: – Paul Ragen

Treasurer: – Peter Gallagher

Committee: – Len Crane, Robert Millard


https://www.oiaustralia.org.au/wp-content/themes/oiaustralia/images/oi-logo.jpg

 We have made every attempt to ensure the accuracy and reliability of the information provided on this page.
However, the information is provided “as is” without warranty of any kind.
We do not accept any responsibility or liability for the accuracy, content, completeness,
legality, or reliability of the information contained on this page.

Join Us

Osteogenesis imperfecta (OI) is a genetic disorder that causes a person's bones to break easily, often from little or no apparent trauma. OI is also called "brittle bone disease." OI varies in severity from person to person, ranging from a mild type to a severe type that causes death before or shortly after birth.

Become a member Become a sponsor