Tips and Tricks

Infusions

Often infusion day creates a lot of anguish for both the person receiving the infusion and those around them.  A couple of tips that have been passed along for making this experience traumatic include:

  • Making sure you are hydrated well in the days leading up to the infusion
  • Keep yourself warm going into the hospital particularly where the infusion is being done
  • Apply Emla cream 45 minutes prior to the infusion (although some people now suggest that this may make it more difficult to find the vein).
  • Using meditation   (a good one is the smiling mind app which can be purchased for free on your mobile device)
  • Taking a soft toy or distraction piece along with the child to hospital
  • distraction, distraction, distraction

 

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Osteogenesis imperfecta (OI) is a genetic disorder that causes a person's bones to break easily, often from little or no apparent trauma. OI is also called "brittle bone disease." OI varies in severity from person to person, ranging from a mild type to a severe type that causes death before or shortly after birth.

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