Meet Arthur

arthurI had just had my 30th birthday in December 1989.  I was diagnosed with OI – Type IVB in January 1990 after presenting with a number of neurological complaints.  I had a major operation to relieve pressure on my brain-stem, in June 1990 in London, on my Basilar Impression which also resulted in Cranio cervical Fusion.  I had a very hard time in rehabilitation, but now, life goes on with some adjustments in life.

Before joining the OI Society of Australia, I thought that I was the only person that had my type of OI condition.  But now I realise that I have an extended family within Australia.

My activities before diagnosis and my operation included practicing Martial Arts, Shaolin Kung Fu, for over ten years.  I also did a static line parachute jump, hot air ballooning, trail bike riding and dragon boat racing.  Suffice to say I was participating in most sports that someone with OI wasn’t supposed to do.  Now I realise how precious every day is.

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Osteogenesis imperfecta (OI) is a genetic disorder that causes a person's bones to break easily, often from little or no apparent trauma. OI is also called "brittle bone disease." OI varies in severity from person to person, ranging from a mild type to a severe type that causes death before or shortly after birth.

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