I had just had my 30th birthday in December 1989. I was diagnosed with OI – Type IVB in January 1990 after presenting with a number of neurological complaints. I had a major operation to relieve pressure on my brain-stem, in June 1990 in London, on my Basilar Impression which also resulted in Cranio cervical Fusion. I had a very hard time in rehabilitation, but now, life goes on with some adjustments in life.
Before joining the OI Society of Australia, I thought that I was the only person that had my type of OI condition. But now I realise that I have an extended family within Australia.
My activities before diagnosis and my operation included practicing Martial Arts, Shaolin Kung Fu, for over ten years. I also did a static line parachute jump, hot air ballooning, trail bike riding and dragon boat racing. Suffice to say I was participating in most sports that someone with OI wasn’t supposed to do. Now I realise how precious every day is.