The Society was formed in 1977 by parents and friends of those with O.I. and is a voluntary organisation with no paid staff or Government funding and incorporated under the seal of the Corporate Affairs Commission at Sydney on 5th May 1978. The Company Number is 204 932-15. The Australian Company No. ACN 001534309.
The Society is registered as a company limited by guarantee under the Companies (NSW) Code. All donations to the Society are Tax Deductible.
The business affairs of the Society are managed by a Board of at least six persons and no more than 12, including a President and two Vice Presidents, all of whom are elected at the AGM.
The Society has been most fortunate over its 25 years with the outstanding dedication of its Board members and particularly in the strong leadership shown by its seven presidents in pursuing the Society's aims.
Special credit should be given to the sterling work of the early presidents who had the most difficult task of getting the "show on the road" from a standing start. At that time, little was known, not only by the medical professionals on Osteogenesis Imperfecta, but also the numbers and distribution of its sufferers within the Community.
Since the Society's inception, the Committee has been composed almost entirely of relatives of children and adults with O.I. As mentioned earlier, as the number of OI people are comparatively few and widely scattered, the enlistment of personnel to run the Society has always been a problem particularly as most of those volunteering have little or no experience in management of a charitable organisation. However approximately 50 stalwarts have come forward over the years and despite the difficult learning curve they all experience, the progress and success of the Society has been creditable.